Monthly Archives: September 2012


By: Scott Lew 9/14/12

 It occurred to me
As I hit my 44th Birthday
And start my 11th year
Living with ALS
That I’ve spent 25%
One quarter of my life
Under the specter
Of this challenging illness
It hasn’t all been fun
But it has been
The perspective
As I devolve
And every little thing
Becomes more intense
That’s enjoyable
But Death
Sitting on my chest
Teasing me not to breathe
Is annoying
Most miraculous
My wife
Without whom
I would be dust
Has lived with IT
For over 80%
Of our marriage
And she still manages
To smile
I’m the Luckiest Man


Filed under ALS, ALS Poetry, Lou Gehrig's Disease, PALS, Poetry, Scott Lew