Tag Archives: Happy Birthday

Happy 50th TFGYWBD, My Love!


Us, on our honeymoon, June 2000

People don’t know
By looking at you
You have ALS
They don’t see
The mental stress
Of wasted muscles
Not being able to
All of which you have
Because you bravely chose
To take on this horrible beast
With me
They don’t know
That nearly 3 years
To the date
We were married
We were diagnosed
And that was
13 years ago
They can’t possibly understand
Your justified
Anger and frustration
At the unfairness
Of life
Which you feel
So strong
Because you have
The most beautiful
And generous
I say
I love you
But that is not enough
Months ago
I was in the hospital
I said
I release you
And instead
Of running away
You said
Not yet
And you helped
Save me
Today is your 50th birthday
There is no gift
I can give you
That can ever match
The sacrifice
You have made for me
I don’t even want to call it
Your birthday
I want to call it
Thank Fucking God
You Were Born Day
So Happy TFGYWBD, Crab Leg
Let’s shake our fist
At the cruel
And laugh


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Happy 75th Birthday, Dad


Happy 75th Birthday, Dad

The greatest gift
 a Dad
Could give his son
 who has ALS
Is to teach him
 how to use
 his mind
Because when
 every muscle fails
 the mind
 is all that remains

You taught me
 by example
I was amazed
 at a very young age
 just how much
 you knew
Seemingly everything
 about everything  
From politics
 to plumbing
From photography
 to electricity
From fine woodworking  
 to the financial
 of corporations
You not only had
 a love for music
You built your own
 top of the line
 by hand
 to maximize
 your listening
No other Dads did that
 and I noticed
 and tried to
 emulate you
 and cultivate my own

So to the guy 
 who is 
 the most curious
 whose hobbies
 are endless
 whose favorite thing
 is talking with someone
 who knows more
 about a subject
 he’s interested in
 than he does
To my Dad
 who likes to tell
 long stories
 which always have
 surprise endings
 and are full of
To my Dad
 who’s beautiful mind
 inspired me
 and gave me
 the mental strength
 that saved
 my life
Infinite cheers
Happy75th Birthday
I love you


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